I am Julie, Daniel's Mom. Daniel has Polymicrogyria. His brain is deformed, caused by a virus in utero. He has seizures, developmental delay, motor dysfunction, severe reflux, respiratory problems,etc He is unable to speak, eat by mouth, or walk. Visual strength and a gentle touch are his means of of communicating. Daniel has strengthened my belief in miracles and faith. Enjoy. Share. Follow. Help. Laugh, Pray, make a new friend.
Tuesday, October 4, 2011
Mother lost
Once upon a time I had a career as a Human Resource Manager. I loved it. Now I am lost having tried MLM type businesses and contract jobs here and there. I essentially walked away from an 80,0000$$ a year career. Because of this boy who needed my attention and care throughout three surgeries and too many illnesses to count there is an intangible value to the giving of oneself to the car of a child but a child like Daniel puts it on another level. Yet I have days where I feel totally lost. Because I need to work to pay my bills! But I also have so much to manage for the boy. Sigh. It's conflicting but I miss adults.
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