Each morning I wake, and rush to his room. Place my hand on his chest...and wait for his breath. I fix up his blankets and check on his diaper. Check on the pump and adjust his position. His curve in his spine...is clear as I move him...but he snuggles back down into what is comfy.
I stand by his bed and watch him so peaceful. And wonder how a child with so many medical challenges could be so peaceful and incredibly beautiful.
Sometimes I can go back to sleep...but usually I stay awake thinking and praying...
I am grateful for how well he is doing. And may I honestly say...with my heart in my hands...that I never thought turning 14 would come so fast.
Now I sit drinking coffee...because the nurse has arrived..
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