Tuesday, December 21, 2010

It's December 21, 2010 and I am so confused. Pulmonary says the oral motor work with food is very dangerous...but GI won't order the barrium swallow study with out 6 sessions of Speech and Language therapy by CCMC's feeding team. Ug. I have decided to send Daniel to school today rather than haul him the hour and a half to Hartford.

Its so hard right now.... these panick attacks and the overwhelming anxiety of trying to get everything taken care of... money is so tight and Christmas is in three days. I cried this morning..but I know somehow there will be a way for me to work in the future.

But for today I have to finish writing out these Christmas Cards and making phone calls to the doctors. There are seriously about 9 big issues with Daniel that I am juggling...not including school.

World...do you know how hard it is to raise a special needs fragile boy? Oh my...I love him so much....but I miss being able to work and make more money. Its a terrible mental struggle I swallow every single day. Help. I wish somehow the pressure could be relieved...just a bit.

Happy Holidays??? Must remember Christ and keep praying.........

Monday, December 20, 2010

FOR GOOD Wicked, sung to Daniel