Silly grocery shopping and a trip to Neurology

The day the seizures came back

I am really feeling beaten down, but not giving up.  I keep praying that somehow, someway, we will get ahead.  I have to take care of this kid.  I did a survey, and most people said that they would need between $100,000 to $200,000 to change their lives.   For me, $52,000 would put me in the position to fix up the house, sell it, downsize, put money in the bank, stay with Daniel and concentrate on his needs, get my degree finished and move south in 4 years.



So I don't know how I am even going to get myself through today, never mind will $52,000 into my bank.  But I do not want anything fancy, I just want a life that isn't going to kill me with a heart attack.



I just have to keep hope in love and stay at peace in my head.   Today, this morning, I woke up and the car Sarah uses had a flat tire.  Seriously?  I just had to laugh.



Life is insane.   I am praying that our you tube channel will spread and grow, because ultimately it will help earn money, as it works.  



One other interesting thing, I heard from an old friend, Kim, whose son Collin used to go to school with Daniel.  She went through the same ordeal with the insurance cancelling Collin's services, and her story is in the paper today.



It is ridiculous...  the way our kids are treated, its as if they just don't matter to the world.  Makes keeping hope even more important friends.



IF I LOSE HOPE WHAT ELSE DO I HAVE???     My John has been incredible lately, as have my children.  We wrap around eachother like a warm blanket because at the end of the day, all that matters is love.

Not a very welcome home, 2 broken down cars

Going Home Day, Travelling with the family

Barefoot Beach and a really nice day

The best time of my year, is when I can be at the beach in Florida.  Letting all of the stress and pressure go...  just for a brief spell...   It comes back 10 fold, especially this year, when we returned home.  Ugh.  Our lift van transmission went!!!

Daniels day at the beach

"What do you want to do today?" dilemna on vacation

Sarah arrives in Florida, our Naples adventure week 2

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Life told thru the lense and from the heart.

Vacation is ending

I am laying in the semi darkness as the sun will be coming up soon. It's July 4 2015.  Tomorrow we head back home to CT from Florida and it's always a tough thing for me.  I do miss my Henry very much, it's been so hard not to let it make me depressed. So that will be nice.  But it's Connecticut in general that makes me weary.  The house I can't afford to repair and the cars too. Too much to clean. Working hard all the time and fighting the ridiculous depression. 

The culture, people, and climate down here changes me and after 10 plus years of staying here I know I am done with the North. 

But regardless of what my heart says or how well Daniel and I both do physically I am aware that vacation ends and there will be that massive pile of mail and that long long "to do" list when we get back.