So many things to be grateful for... I have to mention the luncheon we were invited to on April 29, in New York. Carl Banks was the guest of the luncheon, and he signed autographs and t shirts. A friend of mine, Marc Pintel has a non profit called Pintel for the Homeless, and he invited several local charities to attend, but also included Daniel and our family. We were very honored, and it was a very nice day. Marc presented us with a check towards Daniel's medical expenses and treatments. It was very special to have someone reach out so unconditionally to help us. And it was very cool to meet Carl Banks too!!
And then, in early May I was invited to the Mother's Day luncheon of the Molly Tango Foundation. What a wonderful annual event they have to raise money for the foundation which helps disabled children and their families. Currently, they have helped us with expenses related to the maintenance on Daniel's van..new tires, lift maintenance and badly needed lift repairs!! The Molly Ann Tango Memorial Foundation continues to grow in its giving throughout the Ridegfield/Danbury/Newtown/Bethel ish... area.. So amazing... these people....
And here it is... as I sit...and think. The end of May. What is going on??? Well...
Daniel continues to have intense supplementation of calcium and phosphorus and will have tests done in about two weeks to see if there is an improvement in his bone strength.
He has been gaining weight, up about 5 pounds... but at the same time his Wheelchair is getting too small, his braces are getting too small, his CLOTHES are getting too small. This is a blessing and a financial curse.
Daniel is swimming again, thanks to a scholarship at the Brookfield YMCA which allows him to have a membership for swimming in the therapy pool. We have a dream of being able to have our own therapy pool.....but of course that is just a dream.... but he loves to go and swim.
Summer is just around the corner...and my brain is full of a million issues to resolve and things to do for my children. But with Daniel the management is at a greater level... equipment, therapy, school, medications, appointments, supplies, and it cycles... His scoliosis is worsening... the curve is very evident when you look at him. We just pray that Yale Endocrinology can help us get him stronger....because surgery is inevitable.
Out of the rumble and chaos that goes in my mind daily, as I try so hard to keep things going and keep things taken care of... comes a grateful heart for the people in my life who continue to help us with Daniel... teachers, therapists, nurses, friends....... so many people just adore this boy who calls me Mom.
He needs so much....and he asks for absolutely nothing, except a smile.
Praising God for the goodness in my life and that his blessings will continue to pour out upon our family.
