The day the seizures came back

I am really feeling beaten down, but not giving up.  I keep praying that somehow, someway, we will get ahead.  I have to take care of this kid.  I did a survey, and most people said that they would need between $100,000 to $200,000 to change their lives.   For me, $52,000 would put me in the position to fix up the house, sell it, downsize, put money in the bank, stay with Daniel and concentrate on his needs, get my degree finished and move south in 4 years.



So I don't know how I am even going to get myself through today, never mind will $52,000 into my bank.  But I do not want anything fancy, I just want a life that isn't going to kill me with a heart attack.



I just have to keep hope in love and stay at peace in my head.   Today, this morning, I woke up and the car Sarah uses had a flat tire.  Seriously?  I just had to laugh.



Life is insane.   I am praying that our you tube channel will spread and grow, because ultimately it will help earn money, as it works.  



One other interesting thing, I heard from an old friend, Kim, whose son Collin used to go to school with Daniel.  She went through the same ordeal with the insurance cancelling Collin's services, and her story is in the paper today.



It is ridiculous...  the way our kids are treated, its as if they just don't matter to the world.  Makes keeping hope even more important friends.



IF I LOSE HOPE WHAT ELSE DO I HAVE???     My John has been incredible lately, as have my children.  We wrap around eachother like a warm blanket because at the end of the day, all that matters is love.