Vacation thoughts from home

Will I  remember the way it feels to step from dry coolness in a small condo, out into a warm, humid, sunny walk way lined with mini palm trees and other tropical plants? To walk across the driveway with the squeek of my flip flops and the smell of my sunscreen? Will I forget the way I always tried to see as many geckos as I could, those cute little lizard guys who live all about the complex just scittering and scattering about?  When you come home from vacation in South Western Florida to the "north we know".. its almost like someone plucks you from a dream and drops you harshly back into a cold pool, where there are no palms, no geckos, no amazing vegetation and spectacular sunsets.

Will I remember being able to say, "I'm going to the pool" and just go over to it?"  The white powder sand on the beach, and the 88 degree water that envelopes you in a salty floating paradise under a blue sky, will they fade away into merely photos?  Probably.

What I will never forget is the look on Daniel's face as he is mesmerized by the plane taking off, by the feel of the Florida heat, by the warmth of the ocean, by the lights in the ceilings, by the soft waves coming in and out leaving so many gorgeous white shells.  And Daniel's face as John carries him into the pool, wraps a pool noodle around him, and just floats around.  That look of joy, comfort, freedom, relaxation, and love.  Secure in Dad's arms he lets his body float, kick, and splash.  He bares a farmers tan from his rash guard shirt, and sports a few bug bites on his toes from rogue biting flies that get us all. That face so simple and gentle soaking in the world with his eyes and noticing intricate details of a typical day that to him are amazing. 

Seeing him happy is the reason why we do it.  If it were not for family who love us, we wouldn't be able to witness that joyful face in a place so different and so stimulating.   It is just pure happiness in the moment.  Daniel is pure happiness and truth in the moment too.  The rest of us are all wrapped up in our complications.  Daniel is just enjoying life as it comes and presents new things for him to experience. 

It's simple and completely spectacular. 

Thomas and some big brass, age 13 2014

Thomas is a budding musician
I often wondered what my youngest son would like to do as he started to find his passion.  Not surprisingly he has quite literally submerged himself into music.  I remember playing the flute at that age and it was the one thing that I was really good at.  It was also a place where I could lose myself in the music.

This is Thomas, as the video shows, he's pretty versatile.  This mother is very proud of her children, and especially happy that they have a love for creativity in music.  I am not kidding when I say that this summer Thomas will be playing his main instrument, Baritone Sax, but in addition learning trombone, bass clarinet, tuba, and baritone horn.  Sarah found her passion in strings, she's a viola player.  She also sings, and plays the key board and is learning guitar.

Sometimes on a nice day, if you are walking down the very wooded Bennetts Bridge Road, you may just hear the sounds of brass as Thomas practices outside.  He is a musician, smart, creative, and I love it.

Daniel watches his siblings, older and younger, and listens.  I am not sure precisely what type of music he likes the best, but he is fascinate by the different sights and sounds.  And sometimes, at a show, or a concert he will just find the ceiling vents and lights more interesting.

Would you like some comfort with that chaos?

Living and caring for a child with many disabilities is like living in the middle of a busy intersection blindfolded.  You don't know if taking some steps towards the side will be safe or result in a thwarting strike knocking you off your feet.  Most people sleep at night, wake up in the morning, resume whatever it is their life requires.  Some people know, for instance, that they will shower by 6:30 am, and be to work by 8:00am, have their lunch promptly at noon and leave their place of work at 5:00PM.  They know that they will proceed home, have dinner, watch TV and go to bed.  Throw in some kid stuff, or adult stuff here and there.  Whatever. But with my Daniel I go to sleep not knowing if I will be up again three or four times in the night.  I wake up and have to assess if he is well enough to go to school, and I have to wait to make sure the nurse gets here in time for the bus.  Sometimes the days plans change on a dime, and next thing I know I'm in an ambulance rushing off to one of many hospitals that we use.

 

Does the brain function well in chaos. No, not really.  I think as women, and as Mothers and as people we strive for the comfort of knowing where and when we will rest our butts on our sofa.  Mothers are often talking about the balance.  Finding the "balance" in their lives of work, kids, etc.  Balance is good.  It keeps us level, and when we go off balance we go wacky.  We get manic or we get depressed, overwhelmed and exhausted. 

 

Every once in a blue moon I find a few minutes to sit and think, like now, and I feel like I am roaming through a long hallway of doors, and those doors all have stuff to do inside them, but I don't know which one to open or go into.  Its as if I'm wandering like a lost soul, and then suddenly I am back with Daniel in his room doing "special needs Mother stuff".

 

Tuesday night, May 13, 2014 Daniel was doing well, and nurse Marques was getting him ready for the tub.  Suddenly his temp starts going up up up. by 8:00pm he was 103.  This is the kind of stuff that unravels my warped need for comfort, and balance. Where was I when Daniel had this freak episode which included a significant drop in his oxygen? I was next door at my neighbors house. She lost her 54 year old son, completely unexpectedly and John and were paying our respects and drinking tea. After that,  I thought it would be a normal night at home.  By 10:00pm I was sitting in a crowded emergency room waiting for Daniel to be seen, watching him feverish and breathing laboriously..

 

Its like that.  Unpredictable.  Unplannable.  Chaotic.  Raising Daniel Hasselberger, you see, is a lesson in walking on a balance beam.  With unlimited amounts  of wobbling and bobbling. 

There is very little time in my life for peace and relaxation and friendships.  Having more of that may restore balance in a life that has been falling off balance for so long.

 

I am, to many, a wanderer.  Following the tracks of a terrible condition that afflicted my child.  And quite quite literally I never know which way they will turn. 

 

 

 

 

😄church. Decision

It really is funny how on Sunday morning when I am waking up before all of my meds kick in, and before coffee, I groan at the thought of getting out the door by 8:30.  But once Daniels nurse gets here at 7.  And I have guzzled the first coffee, taken my pills, and found some Advil. I start to get a spark.

They say you need church the most when you are fighting yourself on going.  I most enjoy when I go with my daughter too, because she is absorbing so much. I love her positive energy and company. 

Thomas goes to his teen group and Daniel to Special Forces class. 

I typically don't have but 5 minutes to get ready so I'm not real pretty at the 9 am service. I don't mind. 

It reminds me of the things I wrote down last week that I said I wAs going to do for sure this week. We will remind again. 

I'm surrounded by sarcasm and negative jokes from the minute I open my eyes and the house comes alive.   A little peace will do a girl good. 

Going to church is not about a duty or responsibility.  It's about a relationship. So whether you go once or devotedly it's your relationship with God that matters.  He does, however, like us to fellowship together. 

Happiness. Happiness.  Happiness.  Choose happiness Julie. Choose it. Hold it. Don't let it go today. 

So. Hi ho, hi ho, it's off to church we go. 

Will we make it without anxiety and tension, I don't know. Let me find the Advil because I am stiff and sore 

Have a happy day.  Find something that raises your own personal happiness factor. 

Sunday, January 12 2014

On living in Sandy Hook, a reflection of thought

On living in Sandy Hook, a reflection of thought

It's cold. The sun is gently shining and reflecting off some chunks of snow still left on the tree limb outside the window where I'm sitting.  I have just pulled myself away from facebook.  There are link after links of touching videos, articles, stories, and pictures of the lives so violently taken from our little town.  Our collective focus is reaching out once again to unite us in thought and bring us together so that mentally we don't have to face our fears and grief by ourselves.  There was a giant crack in the universe on December 14, 2012.   Evil came in through the crack, smashing in the glass and destroying love.   Little people, and loving adults taken in merely minutes and seconds.  Leaving behind a feeling of hopeless helplessness. as we just pushed ourselves though day after day.  The winter ended, the Spring came, the sun brought a beautiful spring and summer and hopelessness had transcended into helping hopefulness as the true human spirit emerged and our community embraced the concept of honoring those lost by being kind, choosing love, and paying it forward.

That is Mac the Monkey, he came to visit

We, my husband and three children,  live but a few miles from Sandy Hook School, where two of my children attended for their elementary years.  We live less than a mile from the home of the young man who went crazy with evil intent and drove to that school never to come out alive.  We see the balloons on street signs, sadly blowing back and forth in the wind reminding us of a special child's birthday.  We drive by the homes of the heart broken families every single day, multiple times, and always think of them.  Always. Every time.  We attend church together, we pray together.  Siblings go to school together.  We go to the Big Y and see one of the Mom's doing her shopping get stopped by a friend, and given a hug.  And we keep going about our daily business.  But sometimes you find yourself reminded, and it is as if we are tied to this place by both our grief and our love for each other.

Our children have been altered forever as they cross the the next channel to the other side of their new grade, new class, new friends, and on to college.  It can be really hard to explain the sick knotted lump we feel each time we drive through the center of  Sandy Hook, because sometimes it just has no descriptive definition using words.  It just is.

Living here, as we have since 1994, has been a blessing.  Two of our three children have had a life enriched with community, great educators, music, theatre,  spiritual love, sports, security, and great friends.  So many happy child hood memories.  And now, their elementary school has become somewhat of an American Horror Story location.  Sucking away those memories and replacing them with visual images of brutality and bullets.  We try to return to the happy memories, but as humans, doing that still breaks our hearts.  They walked those halls, went to those classes, knew that school as their comforting home for all of those days of their childhood.

Living here we try to grab hold of that life line which is hope.  We encourage each other with warmth and kindness.  We turn away respectively and give people their privacy to grieve and to experience what they need to experience as human beings.  We know each and every name of the 26 lives lost that day, and we will never forget those names for the rest of our lives.

For me, living here has been a road of ups and downs.  Prior to 12/14 our neighbor tragically lost their son on 11/8/08,  and grief was already living on Bennetts Bridge Road.  Prior to that, about 28 years ago, my direct neighbor Betty lost her sweet 3 year old daughter Bridget, struck and killed by a car on Bennetts Bridge Road.  Grief already lives here. And as a very active member of the Special Needs community and support groups, I can not even tell you how many children we have had to say goodbye to who have the same condition as Daniel, or who are sick with other conditions.

Living here,  there is life with Daniel.  The one of my two children who never attended Sandy Hook School because he was too medically fragile to be mainstreamed.  Daniel always came with me though, and many families remember me always trying to get Daniel's wheelchair into a classroom where an event was taking place.  Daniel was always so happy to be there.  Sarah and Thomas were always the kid "with the brother in the wheelchair".

In my home, especially in the winter time, I feel a great urge to let melancholy and depression just sink in like a cold avalanche of snow.  And yet, I too grab onto the life line.  Daniel is now 16 years old.  Our life is far from normal. I'm under tremendous pressure every day.  I worry about seizures and respiratory arrest especially when he is at school and I am not there.  Daniel is a magical child, who has captured the hearts of so many Newtown children and adults.



And it spread to the entire world when we had a card shower for him, and he received almost 900 birthday cards, and gifts.   Yes, I wrote 900.

Daniel does not have the same emotional connection to 12/14 that so many other children do.  He doesn't have the cognitive understanding of what happened that day.  He probably remembers how sick he was last December 14th, but really he is just as simple as knowing what makes him happy, and what fascinates him.  Perhaps I underestimate him.  But I like to believe that he is a protected spirit bringing love and light into our world.  He doesn't have to feel many of the complicated emotions and fears that the rest of us do, and that is not a bad thing really.

Growing up in Newtown, CT

Living here in Sandy Hook, CT, tucked away in our house on Bennetts Bridge Road, we are doing what everyone else is doing. Continuing to proceed.  However, we have new priorities in our hearts, or stronger focus in our minds, of being kind to others.  It is critical in the human spirit to stay happy by helping others, by paying it forward.  I believe that God, and the spirit of God, works through us, through our relationship with the living God, to spread His love and good works.  Opening your heart to let kindness in, allows that space and light for God to fill you with his love.   And we can do this, while we grieve.  We can continue on.
Living here in Sandy Hook, CT can feel like an anomoly at times.  Ironically a mix of very different people on very different paths.   Some people are extremely wealthy and still maintaining a life that is self focused, but others have changed and are realizing that their very neighbors may need help.  The stories of kindness on Facebook, are amazing.  People are starting to pay attention to helping their neighbors.  To slowing down and really "seeing" who we live with.


As a Mom, living here, in this house, struggling to stay on top of the needs of a very fragile son, I often wish that there was more I could do for others.  I can hardly pay my mortgage, and Christmas is a time of stress and anxiety.  But 900 birthday cards???   Obviously my son, without even trying, has brought something special to so many people.   I can share his love, I can let people know how much the Special Needs community needs help.  Many families are very proud, but they are struggling.  And if people could just realize the magic, and life changing force that a child like Daniel and so many others have, they would be touched and changed forever.

We are here.  In this house.  With this boy. Who is non verbal. In a wheelchair.  And very fragile. He is finally doing well in a December (the past two have been in the hospital) So if that is the Christmas gift this year, we will take it. It's cold. We can't go out with him. His van doesn't drive well in snow and he can't tolerate the cold temperature.  What can I do?  Just think about the little drummer boy, and it will come to you.

What is it like to live here in Sandy Hook, CT?  Its beautiful.  Simply beautiful.  Evil will never win here.  Love wins.  We really do choose love.  I hope you will too, where ever you live.

Julie Hasselberger

12/12/13

Responsibility or Fear, Memories or mishaps, thoughts about the journey, September 2013........

The BEST antidepressant

Henry, 4 months old

September 24, 2013

I walked Henry this morning missing my daughter who is at college, and had myself good cry.  I wonder at times what is going to happen to our family structure because the stress is managed differently by each person.  Things are perceived as having different impacts, or levels of importance.  I manage the daily business of Daniel quietly in my office, by myself.  And I manage it with him, in the house and in the Van on the road to where ever.   The business of what to do, who to write to, who to call, what procedures are need, researching therapies, scheduling scheduling scheduling.  Then of course there is the "getting to places" such as hospitals, labs, clinics, doctors office.   And of course there is also education management.  And equipment needs of course. You know, its all been said before.
  

I have been doing this for a long long long time.   But I still feel unsettled every single day.   And I think its because my family structure wobbles and implodes under pressure.   Research shows, that parents have a greater liklihood of separating in situations like these.  I think inherently the fact that we look at our situation completely from polar opposite ends is a big issue.  

And I have to maintain and manage, for the sake of Daniel. For the sake of the children.  It is I, Julie, who decides which doctor Daniel goes to.  I decide what to do, when to do. I attend the school PPT meetings about his education goals. I take him to appointments, and bring him for blood work.   I feel his pain, and I understand his "language".  And now I am training a special little dog to provide comfort and friendship.

The sun shines.  The moon and stars come out. Another day.  And almost always I feel such an overwhelming responsibility.   

I can do everything.  I can manage it all.  I feel so empowered and so strong.  Until the money part hits.  This is where the polar opposite thing hits.  Do I put Daniel's entire life at chance and go to a full time job?  Or do I stay in my God given role as his care giver, his Mom, his confidence, his love, his support, his world.  

Yeah, I know the answer to that one.  And in prayer Lord I ask that you lift me up.   

And in my walk this morning, I wondered where things are going.  And how some people really just don't have the ability to release perceptions of perfection and what SHOULD BE, and release consuming anger and frustration, and release disappointment and negative expressions...   And I guess we are, who we are.

I met with two amazing young ladies yesterday, Hayley and Romy...  They are embarking on a project called "Fight for Daniel, Forever"  to raise money for him, and also show the community how much they love and care for this non verbal disabled boy, who sits in a small classroom separated from most.  But who meets 5th and 6th graders who come in to volunteer.  

And those girls, as we talked...  amazed me with their mature enthusiasm and compassion.  It wasn't about a "project" that was needed to be done.  It was completely about Daniel and how much he had changed their lives.  And how they want to do something to help him.

Do we need the money, oh my GOD yes...  But it is so much more than that.  Watching them talk about their compassion for the disabled....made me realize the greater good at work here.  These lessons they learn will forever impact their future.  

I am open to help from others, because without it, I would be in a very sad and very dark little place of stress.  

So that's kind of where I'm at today.  What do I do??   

How do I manage the discourse in my personal relationships and still do the best I can for Daniel.

Well, based on Sarah and Thomas...  I think I'm doing pretty well.   If I were able to financially remove some of the pressure, I would be better.  But I have honestly come to accept that it will be with me for the rest of my life, on this physical earth anyhow.

And we are not alone.  A severely disabled child, being cared for in your home... has profound, big time, effects on EVERYTHING and EVERYBODY.  

But the sun goes up, the day is pretty and cool and the moon and stars come out, and we are a day older.   As each day departs, I should ponder, "what did I do today that made a difference?  Am I living a purpose driven life? Do I have memories to look back on that make me laugh and fill my heart with joy? Does the love and behavior in my marriage outweigh the anger and discourse?  Is Daniel happy?  When will I start taking better care of myself?  Have I remembered to keep my faith strong that God will provide what we need?  Am I fearful, or trusting?  What is the best thing that happened today?  

And now.... now it is 10:21am on a September morning.  Very chilly.  The phone just rang and it was one of THOSE calls, the kind I never answer.

And Henry needs a walk.  I need to clean and bake a batch of cookies to mail to my college who I miss with my entire heart.  

The day will end.  I don't know where my mind will be.  But I'm going to try hard to keep my faith in perspective.  Almost 16 years now of raising Daniel.  Amazing stuff.

Julie A. Hasselberger, 

Mom to Daniel, age 15, bilateral diffuse perisylvian polymicrogyria and microcephaly, caused by the CMV virus. Non verbal, wheelchair, seizures, feeding dysfunction, developmental delay, global disabilities, multiple surgeries for hip dysplasia, muscle release, severe gastrointestinal issues, fragile respiratory system, history of aspiration and pneumonia, etc.   That.  Is.  Me. Julie Ann Hasselberger

The words that don't lie.....Living with a disabled child can have profound effects on the entire family–parents, siblings, and extended family members. It is a unique shared experience for families and can affect all aspects of family functioning. On the positive side, it can broaden horizons, increase family members' awareness of their inner strength, enhance family cohesion, and encourage connections to community groups or religious institutions. On the negative side, the time and financial costs, physical and emotional demands, and logistical complexities associated with raising a disabled child can have far-reaching effects as we describe below. The impacts will likely depend on the type of condition and severity, as well as the physical, emotional, and financial wherewithal of the family and the resources that are available.For parents, having a disabled child may increase stress, take a toll on mental and physical health, make it difficult to find appropriate and affordable child care, and affect decisions about work, education/training, having additional children, and relying on public support. It may be associated with guilt, blame, or reduced self-esteem. It may divert attention from other aspects of family functioning. The out-of-pocket costs of medical care and other services may be enormous. All of these potential effects could have repercussions for the quality of the relationship between the parents, their living arrangements, and future relationships and family structure. Having a disabled child may also affect parents' allocation of time and financial resources to their healthy and unhealthy children, their parenting practices, their expectations of healthy siblings in terms of achievement, responsibility, and short- and long-term contributions to the household, and the siblings' health and development. Finally, having a disabled child in the family may affect the contributions of time and financial resources on the part of the child's grandparents or other extended family members, the relationships of those individuals to the core family, and the financial, physical, and emotional well-being of those family members. All of these potential effects on families have implications for the health and well-being of disabled children.
Today’s parents face a world of challenges with everything from keeping themselves healthy and happy to providing their children a safe environment that fosters the physical, emotional and social growth of their children in today’s society. Sometimes the everyday demands of life seem too great to overcome and families will experience stress and/or crisis as they try to survive. Often families will fall apart or choose to split up the family unit in response to money struggles, addictions, abuse, health, or just plain unhappiness. It is no surprise then to learn that having a child with a disability can also drive families apart or into a state of chronic stress or crisis. This does not have to be the case. This article addresses not only how having a child with a disability can impact the family system, but also how families can use their circumstances to become a more resilient and healthy family.
Impact on Family Life 
• Caregivers play a central role in the lives of children and their own wellbeing is inextricably 
linked to that of their children. 
• Compared to families of typical children, caregivers of children with disabilities experience: 
• increased time demands (everyday care, medical appointments) 
• higher medical costs (2.5 – 20x typical amounts) 
• greater childcare challenges (respite care, special accommodation in regular programs) 
• more employment constraints (work schedule, choice of occupation) 
• lower income 
• greater stress, anxiety about the future, lack of sleep 
• Caring for a child with a disability may result in an increase in a wide variety of both physical 
and psychological health concerns for caregivers. 

“…it is not the child’s disability that handicaps and disintegrates families; it is the way they react to it and to each other” (Dickman & Gordon, 1985, p. 109).

When still legs meet the water.

There is something quite magical about taking a child with spastic quadraparesis, out of a wheelchair and bringing their non moving legs into the fluidity of the water.  Therapeutically it goes without saying, water is very healing and effective for range of motion and exercise.   Thankfully this summer, the warm weather has made the town pool at Treadwell Park warm enough for Daniel to tolerate.  He is getting tall, and heavier...and we find that we have to take turns working with him in order to give our arms and shoulders a rest.  Seeing how much he loves the water...  is such a joyful thing...  priceless moments as they would say in a VISA commercial, right?

Summer has been warm and cheerful this year, with Daniel receiving a hefty daily dose of additional phosphorus and calcium supplementation to really build up his bones.  We are still waiting to see how much improvement in bone health and strength has been achieved, but just seeing him kick and thrash and throw his body around in the pool....convinces me that there is quite clearly some degree of strength improvement.

But even the pool, as much as he loves it, is risky business.  One swallow of water will go down into the airway and cause problems with breathing so we have to be very careful not to ever let the head go into the water.   NOT always an easy task.  Sometimes even a splash from a nearby child can land in his mouth and cause a rattle of congestion.   But so far, no respiratory emergencies.  Watching the children flinging themselves off the diving board...or swimming underwater to retrieve a diving toy...I wonder if they know how lucky they are...but some things are just assumed...  motor skills... check...moving on.

I've been telling myself every single day, that a positive heart has to take control. And that as a strong woman and Mom...I will find a way to get through all of the ups and downs...  we've come this far.  Its a story of triumph, of compassion, of people helping people, and of never giving up on my child.  Never giving up on my family...and giving them what they need.  It is not easy....and quite frankly...more like a war than a struggle sometimes.  

Today is July 24th.  I have been looking for a job but have had absolutely no luck.  I am studying to take my property and casualty exam but that will take alot of time.  I am always on the look out for some grant, program, part time opportunity, anything that will help bring in funds.   Here is where I deep sigh at myself.  The piles of issues are still there, like a big thick wall that encloses me.  Every day I pray with all of my heart that this will be the day a miracle comes our way...  that somehow God will continue to shine his light on us.    

We are a Mom, a Dad, and three kids.  And Daniel is the one kid who needs 100% of our attention, 24 hours a day in order to keep him safe, healthy, happy, and lets face it... Alive.    That degree of attention steals away from making money and being prosperous...because 1) our expenses are ridiculously always increasing for him and 2) my career aspirations have been stomped on because I'm out of the work force for 10 years now.   I have an MBA and they all tell me, no thanks.

So there is some solace in the warmth of the sun, the ability to swim and be together...  God has blessed our family since June by bringing us closer together... and that has been wonderful.  

Daniel is a quiet, non verbal, teenage boy with big wide eyes studying the world.  I can only imagine what it must feel like for him to be immersed into a swimming pool!!!  You can feel happiness just radiate from him.

 Daniel is in Special Needs summer school until August 9th.  He is receiving physical therapy, occupational therapy and speech therapy there.  He is also receiving physical therapy and occupational therapy at home. We are doing everything we can to keep his scoliosis flexible and keep his positioning safe.

My bad day

Today is Sunday December 11, 2011.  I'm tired from lugging up Christmas decorations from the basement.  My heart isn't into it. And my legs feel heavy. This year is not feeling like holiday cheer for me...not yet anyhow. Today as we were about to take him out for a walk...he projectile vomitted. Which is a huge problem, because he had a surgical procedure to prevent this from happening. Why? Because he aspirates when this happens. And I found myself right back in "Daniel factor" mode.... call the doctor, get the zofran, pedialyte, congestion? Fever?    As it is, I have to take him for a spinal xray this week for the scoliosis.  I feel like I am doing a good job with him....but there is always more you wish you could be doing.  Sarah and Thomas have wish lists...  and so most people, for that matter....but Daniel???   Daniel can't tell me what he wishes for.  He can't tell me when he feels nauseaus or if something is hurting him.  Day after day after day....he is 14 years old....and I love him so much... but today I'm ....well...just kind of blank and sad.  I know I have to pray. But sometimes...I just sit in the darkness.  and think.   We put the tree into the stand. Put the candles in the windows.  Even set up my Christmas village.  But I don't feel a relief from my never ending gut feeling of fear...  fear that something else is going to go wrong.  Fear about the financial pressures here.  Fear that I am not healthy and will get sick.  I guess its natural...when you live with a medically fragile son.  And I guess I just talked myself into every reason why I SHOULD be praying, right?


"Lord, please, grant me with the ability to stay motivated, stay positive, and continue with resilience to fight this fight I am in..  Thank you for the many many blessings you have given us.  Please care for the children and their families who are burdened so heavily just for the sake of wanting to live.   Thank you for loving me, and for giving your precious son to us...  Please God...help me to remember that Jesus is the best gift.  And in times that are so tight...he is our light and salvation...  thank you.  I am so humbled and grateful."


With love Julie

Last Year's Tree...    I have work to do still....

Now...back to Daniel's side I go.   Maybe tomorrow I'll put lights on the tree.  Maybe tomorrow I'll be in the hospital praying for healing.  Who knows.  who knows.