On living in Sandy Hook, a reflection of thought
That is Mac the Monkey, he came to visit |
Our children have been altered forever as they cross the the next channel to the other side of their new grade, new class, new friends, and on to college. It can be really hard to explain the sick knotted lump we feel each time we drive through the center of Sandy Hook, because sometimes it just has no descriptive definition using words. It just is.
Living here we try to grab hold of that life line which is hope. We encourage each other with warmth and kindness. We turn away respectively and give people their privacy to grieve and to experience what they need to experience as human beings. We know each and every name of the 26 lives lost that day, and we will never forget those names for the rest of our lives.
For me, living here has been a road of ups and downs. Prior to 12/14 our neighbor tragically lost their son on 11/8/08, and grief was already living on Bennetts Bridge Road. Prior to that, about 28 years ago, my direct neighbor Betty lost her sweet 3 year old daughter Bridget, struck and killed by a car on Bennetts Bridge Road. Grief already lives here. And as a very active member of the Special Needs community and support groups, I can not even tell you how many children we have had to say goodbye to who have the same condition as Daniel, or who are sick with other conditions.
Living here, there is life with Daniel. The one of my two children who never attended Sandy Hook School because he was too medically fragile to be mainstreamed. Daniel always came with me though, and many families remember me always trying to get Daniel's wheelchair into a classroom where an event was taking place. Daniel was always so happy to be there. Sarah and Thomas were always the kid "with the brother in the wheelchair".
In my home, especially in the winter time, I feel a great urge to let melancholy and depression just sink in like a cold avalanche of snow. And yet, I too grab onto the life line. Daniel is now 16 years old. Our life is far from normal. I'm under tremendous pressure every day. I worry about seizures and respiratory arrest especially when he is at school and I am not there. Daniel is a magical child, who has captured the hearts of so many Newtown children and adults.
And it spread to the entire world when we had a card shower for him, and he received almost 900 birthday cards, and gifts. Yes, I wrote 900.
Daniel does not have the same emotional connection to 12/14 that so many other children do. He doesn't have the cognitive understanding of what happened that day. He probably remembers how sick he was last December 14th, but really he is just as simple as knowing what makes him happy, and what fascinates him. Perhaps I underestimate him. But I like to believe that he is a protected spirit bringing love and light into our world. He doesn't have to feel many of the complicated emotions and fears that the rest of us do, and that is not a bad thing really.
Growing up in Newtown, CT |
Living here in Sandy Hook, CT can feel like an anomoly at times. Ironically a mix of very different people on very different paths. Some people are extremely wealthy and still maintaining a life that is self focused, but others have changed and are realizing that their very neighbors may need help. The stories of kindness on Facebook, are amazing. People are starting to pay attention to helping their neighbors. To slowing down and really "seeing" who we live with.
As a Mom, living here, in this house, struggling to stay on top of the needs of a very fragile son, I often wish that there was more I could do for others. I can hardly pay my mortgage, and Christmas is a time of stress and anxiety. But 900 birthday cards??? Obviously my son, without even trying, has brought something special to so many people. I can share his love, I can let people know how much the Special Needs community needs help. Many families are very proud, but they are struggling. And if people could just realize the magic, and life changing force that a child like Daniel and so many others have, they would be touched and changed forever.
We are here. In this house. With this boy. Who is non verbal. In a wheelchair. And very fragile. He is finally doing well in a December (the past two have been in the hospital) So if that is the Christmas gift this year, we will take it. It's cold. We can't go out with him. His van doesn't drive well in snow and he can't tolerate the cold temperature. What can I do? Just think about the little drummer boy, and it will come to you.
What is it like to live here in Sandy Hook, CT? Its beautiful. Simply beautiful. Evil will never win here. Love wins. We really do choose love. I hope you will too, where ever you live.
Julie Hasselberger
12/12/13
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