Storm Alfred Booing, and a WTF reaction

So this storm came on October 29th and dumped a ton of heavy snow on our Fall trees, mostly full of colorful leaves still.  All night long we heard crack, snap, and little by little power went out all over town.  Aerial view was probably creepy if you were looking down!


We also got "boo'd" early in the evening...  and it was a bag of goodies...with generous financial donations for Daniel's fund.  About $700 towards our goal!!  It was an amazing gesture.  


Then more snow.  more more more....  The next day was October 30.  And 99% of our town was in the dark. Trees were down everywhere the eye could see.  Miraculously, like in Hurricane Irene... we were the small percentage who still had power.  All we lost was our Cable TV.    I decided that an Angel was sent to protect Daniel since we don't have a generator, and he needs power to eat, have breathing treatments, etc.  


Today is ...November 3.  The kids had no school this entire week.  Much of the town...and state ....still in the dark.   


Sarah told me she feels like we are in an alternate universe. I have to agree.  All that is normal was turned upside down.    How do you cancel Halloween???   


New England got hit hard...again.  Its been a very hard Fall...  my yard looks like "tree limb carnage"


But what can you do except continue on.   I need to keep working on raising funds for Daniel, and looking for a way to get to nursing school.  I have started believing that I need to take care of JULIE.   Storm Alfred woke me up.  Big Time.   Through prayer and a spirit of resilience I am going to make it through my own personal storm here.    I have so many people helping me.  Loving us.  And I love them in return.   Raising Daniel is a giant task.  Raising Daniel in hurricanes and Nor Easters... lol...  alittle more challenging.   

Our Surprise Boo gifts from some very caring Newtown People!!!

Saturday's ride home from our last Football game

Tree limbs snapped off everywhere

This was my Japanese Maple tree...completely bent over

Snow was so heavy you couldnt use a snow blower

Several of these branches eventually gave way and broke

Not a swamp creature!!!  It is what is left of a giant very full willow

All the trees just in an arc shape.  They looked so sad...

Snow before Halloween.

Very symbolic of the strangeness... this giant pumpkin snowman made me stop my car and take a picture!!!

Roads completely blocked off

He (Daniel) never seems to stop smiling.       God bless you all.

GoFundMe in the Fall...2011

Man....grey sky, orange leaves, cold air... so damp ....  Clearly winter is starting to move closer.  Today I have spent the entire morning on my computer...  Looking for other funding mechanisms, grants and programs for special needs children.    Looking for jobs...feeling very frustrated.  I am a confused jumbled mess today.

I did get a recommendation to use GOFUNDME.com   Which I think is a cool new website ...  You can set up a measureable goal to attain and work towards in your fund raising efforts.

And then share it with Facebook, twitter, etc.  So I set one up for my guy Daniel.  Who God knows needs so much more than I can provide in my meager time consuming all encompassing life.

If I could draw life as a giant rollercoaster I would.  Because I am on one every single day. It never settles, it never stops, there are moments of relief ....and then it starts again.

and again.

and again.

Please see GofundMe   recommend it to a friend.  Maybe you need to raise funds for something or someone special.  Try it.  

Somewhere in this house there must be warm sweaters.  I know its pretty to look at...but Fall this year is a prelude to wondering... "after last winter what the heck is going to happen this year?"

Stepping out on faith prayer

Dear God, You will hear my prayers as I go to sleep tonight.  I pray Lord that you guide me into light.  Please provide a miracle, a life line.  Open hearts and open minds.  New beginnings.  Wounds to be healed.  Please please secure my home, my cars our home. That we may safely provide and care for our children...and have a place  to raise them without constant fear and worry.  Bless my Daniel, that he will have yet another restful night without seizures and will wake happy.

Help me be a good mother and a good wife.  Take away pain and replace with perserverence.  I need to step out on Faith Lord.  And I am stepping out by asking for your help.

Amen

It is Fall 2011. Times are kind of tough right now. Daniel has recently been diagnosed with scoliosis. He may need surgery in the near future, as it appears to be worsening with a curve to the left side.

I have found life very challenging... needing to work, but needing to be here with Daniel. We really are battling to keep the house, which was renovated for Daniel's accessibility. But the bills and medical expenses are wiping us out.

Every time I turn a corner it seems like another problem presents itself. Daniel's van needs repairs, we have a giant oil bill to pay, and medical bills that insurance is not covering.

I find myself seeking help again.... which is very hard to do...but we only want to keep our family secure and if our cars die, and we have to move... then what do we do? We live a basic life as it is.

Daniel is a darling kid.... he is turning 14 next month... if there is anything possible you could do to help us. Even if its just a prayer... Please do. Polymicrogyria is a rare but serious and life threatening diagnosis. I live every day fearing that he won't wake up, or that something bad will progress.

We are at 35 Bennetts Bridge Road Sandy Hook CT 06482 jhasselberger@snet.net

Please help us if you can, or suggest things that you may be aware of. There is also a PayPal button on the home page...for donations as well.

I wish I could stay in a full time career, and make sure he is well cared for...but it just doesnt seem to work that way.. no matter how I try. He needs me... I am his advocated, and his 13 doctors, well... we are in the hospital and doctors offices almost constantly.

My goal is to raise $5000 this Fall to pay some bills, and take the pressure off.

Much love... I have to go back to calling doctors...because that is what I do when I have these quiet moments in my office. Someone suggested blogging...and making a new website... I couldnt afford to keep the old one going.

Peace and love.... Julie