Things said and asked... just to name a few

DANIEL. 

Things people say because you have a disabled child.  This is just a list of the most frequent.

I'm so sorry.

What happened to him?

Did you know when you were pregnant?

How much does he communicate with you?

God only gives you what you can handle.

You are an incredible person.

How is Daniel doing? How is Daniel doing?How is Daniel doing?

He's a beautiful child.

He's an angel.

I could NEVER do what you do.

Can I help you?

I don't know how you do it.

How are Sarah and Thomas with him?

Can he understand you?

Did you know during your pregnancy?

You really should do something for yourself.

You really need to take care of yourself.

What do you do to take care of yourself?

How is your marriage handling the stress?

You really need to take care of yourself.

Do you get any help from family?

What kind of support do you have from family?

Do you get any help from anyone?

How can we help you?

Does the state help you?

You mean you LIFT him?

Where does he go to school?

What is his prognosis?

I feel so bad for you.

He should have a dog.

Life only gives us what we can handle.

God thinks you are very special.

Can I say hello to him?

Which is the better arm for blood draw.

So tell me his underlying history.

What medications is he on?

How often does he have seizures?

That's the nicest Mick-ey site I've ever seen.

Is he comfortable?

Polymicrogyia??How do you spell that.

You have done such a great job with him, he's beautiful.

You are a very special and strong person.

I'm so sorry.

Just to name a few.

THESE ARE QUESTIONS AND STATEMENTS I MAKE FREQUENTLY

Where is the elevator?

Where can I change the diaper of a teenager?

Why isn't the insurance covering that?

How do I get into that building/house/facility there isn't a ramp.

Why is that car parked in the handicap spot, I need to let the lift down.

I have to go to CVS.  I have to go to CVS.  I have to go to CVS.

The nurse called out today?

Do I have enough gloves, wipes, feeding pump bags, diapers, pads, tubing, pulse ox probes...

The lift motor is broken.

The wheelchair is broken.

He can't fit in this store.

The handicap seats are way in the back, or way in the front?

Daniel is fussy and I don't know why.

No I can't park there, I need to let the lift down.

What is it like to be able to sleep without a monitor next to your ear.

What is his pulse OX?

Does he have a fever?

Which doctor do I need to call for that problem.

The lift on the van needs work.

Why is he awake at 3am? 4am? etc.

People keep telling me to take care of myself, like that's possible.

Daniel needs me.  

I have a child who needs me for everything in his life.  How can I work?

How am I going to care for  him at home and still meet all of our needs?

He looks flushed.

Did he poop?  

Whats the volume on his neocate?

Call the Neurologist. Call the pulmonologist.  Call the Gastroenterologist.

Do you think insurance would ever cover a pool.

I wish Newtown had a therapy pool.

I wish Newtown had an accessible playground.

I wish I didn't need so much money just to care for a special needs kid.

I should get paid for what I do.

Someday I am going to actually read all of his IEP report.

The hump on my neck is from 15 years of lifting.

My body hurts.

"WAIT I HAVE TO CHANGE DANIEL!!!!"

I need a nap.

I need coffee.

Did I pay all the bills this month?

I wish I had more people in my life.

I adore spending time with Daniel.  What's not to love.   

Am I doing enough for him? How do I know.

John, he's having a seizure. Help.

Do you think he will be ok at this concert, meeting, family event, movie etc.

If God only gives you what you can handle, then why don't I feel like a superhero.  

Daniel's bus is here.

Remember I have your brother all day and can't take you there!!!

Do his AFO's still fit?  

What? How much?  Just for that?  

I need a nap, and a massage.

I love the kids at school who volunteer.

What do you mean you don't know how I do it?   YOU JUST DO IT,  HE IS YOUR CHILD!

I love you Daniel.