June 12, 2013 5:15PM
Hi friends, if you could retweet for Daniel? If not no worries. Much love, Julie
After I tweeted and posted links to Daniel's fund. So many fragmented thoughts exploded from my head like fireworks. So I wrote them down. Random. But profound. I think it defines my life.
Tweets. And Posts. Articles and letters. Research and back up research. Applications and appeals. More Tweets. More posts. Kindness of others. Some who are not so kind. Doctors offices. Calling and scheduling. Rescheduling. Waiting. Calling the on call doctor. Having to explain the health state of the child, again. Bank accounts. Bills. Scratching your head until your hair falls out. Trying to work. Having to leave. Trying to work independently. Failing the certification exam. Taking care of other children. What's for dinner. Did you call Toyota yet. What's the status of the laundry. Paperwork. Get gas. Emissions is due. College information. Graduation details. Dresses for parties. Dresses for proms. Football cleats = $100. Special needs handsplints = $3000.
Wheelchair repairs. Diapers and gloves and wipes and pads and desitin and balmex and lysol. Clean the bathroom. Charge the lift. Why does the shower sling smell bad. What's the status of the laundry. 20 year old cat won't use the box. Did you order my sneakers yet. Did you make my lunch. I want water, water to go, coffee for now and coffee to go!!! What are your plans for the day? What did you do all day? Where did we get the money to pay for that. Is there any particular reason why the dishes are not done?Drive to CVS. Drive to CVS again. Football training camp. Music lessons. Occupational therapy. Physical therapy. Drive to Yale for GI clinic. Stool sample. Need new probe for the pulse ox. Your blood pressure is high. Order feeding pump bags and syringes. Order Neocate. Did you call Toyota yet? Call the plumber. Fix the rotting window sills. Drive to the pediatrician. Call the school. Call the school again. Text the nurse. What's for dinner. Clip coupons.
Go grocery shopping. Get gas. Wash the car. Clean the house. Clean the guinea pig cage. Feed the cats. Scoop the poop. Vaccuum. But new shirt and tie for the concert. Get instrument repaired. Need a new shoulder rest. Need new dresses. Need you to clean my sheets. Call about the medication. Talk to the doctor. Talk to the doctor. Go to the doctor. It's time to go to football. I am broke. Did you call Toyota yet? Turn down your music. Call Dr. Baum to schedule appointment. Call teacher about the project. Plan summer activities. Schedule vacation. Drive to dentist. Drive to eye doctor. Did you call Toyota yet. Send birthday cards. Send anniversary cards. Plan graduation party. Do laundry. Wash floors. Dust house. Clean bathrooms. Get more Bleach.
You are snoring go into the other room. Get off your computer. Lose weight and exercise. Get the mail. Buy a generator. Call the septic, chimney clean, chimney repair, crack in foundation guy, terminix, plumber, electrician. What is the status of the laundry. Try to work. Have to leave to pick someone up. Try to take the test again. Have to reschedule 5 times. Cry alone in my bed. No one needs to hear that. Do the budget. Cry after doing the budget. Check on Daniel. Make sure the monitor is working. Pump is going off. Need to re-prime. Why is he crying. Why is he sleeping so much. Mom we have to go to football. You are always tired. You should go to the gym today.
Mom I need you. Mom will you go upstairs and get my "...". Review IEP goals. Determine what additional therapies will help Daniel. determine what he needs. Find ways to acquire them. Choose happiness. What is the status of the laundry. Why does she have to use our shower. I don't like the candles burning. We can't have anything nice. Call the doctor. Go to CVS.
Take medicine for pain and depression. Drink more coffee. Schedule things in my calendar. Make lists of things to be scheduled in my calendar. Have a nice time at the pool. Yes you can go to the gym. I don't know where your headphones are. Daniel is having a seizure. How do we do the diastat i forgot. Call 911. Pack an overnight bag just in case. Call the doctor. Take some advil. What is for dinner. Did you call Toyota yet. Take a pill. I won't go to therapy if you don't like it call a divorce lawyer. Do you want a treat? Tinker threw up. Time for Football. Take something out for dinner. Look for a job. You should take care of yourself. Call Thomas up for bed. Tuck me in. Put me to bed. You snore go away. This place is a pigsty. Don't touch my stuff. I am tired. My back hurts. I don't feel good. Leave me alone. What is the status of the laundry. Empty the dishwasher.
It's time to go to football. I love you Mom. I emailed my guidance teacher. I can't take the hostility. What's wrong with Daniel. I rely on my Mom. Go to CVS. We should be back in church. Get money. Study for test again. Reschedule again. Concert. Audition. rehearsal. recital. lesson. Drive to CVS. The lift broke. Call the technician. Go to the dump. What is the status of the laundry. I love you too Thomas.
Dinner?
Julie Hasselberger
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