June 3, 2013 Reflections on a Monday.

Daniel had a rough weekend.  It is the unexplained fussiness and biting of his hands.  He can't seem to get comfortable and he gets really really upset.  I felt like every 10 minutes I would hear him crying in his room with the nurse.  Sunday was simply awful.  On and off all day long.  Something just isnt right. On Friday, he was delightful all day.  Full of giggles and happiness, no fussy behavior AT ALL.

I'ts the kind of thing that just simply makes you feel like you are losing your mind.  Is it spasms, is it stomach, is it back pain, or maybe he has a problem with his nurse? I don't know.  I'm baffled.

I do know that I have to get Daniel back into a pool again.  He has not entered the water since having his spinal fusion surgery in December 2012.  But the town park pool needs to be warmer, and we no longer have a membership to the YMCA to use their therapy pool.  I'll figure something out eventually.

It is the busy world of everyone else that pulls me away from getting Daniel set up in activities like aqua therapy.  Sarah's graduation is coming up soon. She has so many things happening that I get too tired trying to process it all.  Summer vacation is just around the corner.

But Saturday we did take Daniel to the Danbury Fair Mall to just walk and have a break from being in the house.  Daniel loves the mall.  I do have two issues that frustrate me as the Mom of a wheelchair child. 1. is the people who cram into the elevator, when 10 yards away there is a perfectly fine escalator.  You look at them, and want to shout out, YOUR LEGS WORK YOU LAZY PERSON!!!   As the door closes on you because Daniel's wheelchair won't fit.  That elevator is small to begin with.   2. Is the Handicap Van parking spots.  There are TWO. Only two spots that are covered, where oversized handicap vans can park.  A few steps away, inside the garage, there are numerous regular handicap spots on all of the floors.  But it never fails!!!  There is always a car parked there.  The sign specifically says... "VAN PARKING ONLY" but they park their anyhow.  So when a large vehicle comes with special needs patrons, they have to find another spot far away which is harder on the disabled individuals.

So that's my bit for today.  I need to rest my overwhelmed brain for a few minutes.