Raising Daniel Hasselberger, a journey with Polymicrogyria

I am Julie, Daniel's Mom. Daniel has Polymicrogyria. His brain is deformed, caused by a virus in utero. He has seizures, developmental delay, motor dysfunction, severe reflux, respiratory problems,etc He is unable to speak, eat by mouth, or walk. Visual strength and a gentle touch are his means of of communicating. Daniel has strengthened my belief in miracles and faith. Enjoy. Share. Follow. Help. Laugh, Pray, make a new friend.

Monday, December 3, 2012

Spinal Fusion Journey, Day ONE...December 3, 2012

Arriving at 6:30am

4:34am. Woke up. Took a shower, got Daniel ready... and we left at 5:30am

Arrived at Yale New Haven Childrens Hospital, New Haven CT at 6:30am and he went into surgery at 7:30am.

From 7:30am until 5:30pm they operated on him. And we waited. And waited. And dozed. And waited some more.

And now we are currently waiting, for the doctor to come and give us an update. He will be moved to the PICU and will stay intubated after this.

Pre Op Moments

Pre Op moments

Pre Op Moments

I will update more later.

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