Here I sit, in another room, in the quiet. Well, there are some annoying beeps and buzzes coming from somewhere. Typically once you get to the floor after the ICU there is a culture shock adjustment. The level of care is good, but the attention you get is much different. And that is good, because rest is needed.
Yesterday, I was beyond exhausted and decided to head home to see Sarah and Thomas and get some much needed sleep. A friend brought by a fabulous hot cooked dinner just as I pulled into the driveway after picking up the kids. We ate dinner, and all three of us were sleeping by 9:00pm.
Then the coughing started. From Sarah. By morning she had been coughing in her sleep most of the night, keeping me awake. So much for much needed sleep, home was just like hospital. She had a fever in the morning and I kept her home. Waited for Thomas to get home and then headed back here to Yale to switcheroo with Daddy.
Daniel had a rough first night on the Pediatric Floor, his respiratory situation went south and his oxygen levels were going into the mid to low 80's (this is bad). But the respiratory people came in and suctioned him like crazy (this is good) and he began to breath better.
His eyes were itching him like mad, and John didn't know why or how to help him. They gave him benedryl (which he isnt supposed to have due to how it affects seizures) But he slept well once it kicked in.
I got here today with Thomas who was anxious to see his brother finally. Took one look at Daniel's eye and told the nurse to get the doctor in here because its pink eye. I was right, they ordered the antibiotic drops. Dr. Mom strikes again.
Pain is still an issue, as it will be for a long time. Daniel will be in his wheel chair again tonight (the reclined one) and its good for him to be up in the chair. His pain meds are all via the g tube now, and he has restarted his g tube feeds today.
It's Friday, and over the weekend they will watch him, take more x rays, and make a decision about discharge possibly Monday or Tuesday.
This boy is a super Trooper. I can tell you that. I know he is probably wondering what the hell did they do to my back!!! But, God willing, it all turns out for the best.
I really wish someone in this hospital would silence that alarm before my head explodes.
So its day 6. Its been a long scary, exhausting, emotional week. And now we are facing the rehab part at home, which will be somewhat daunting as well due to the fact that transfer requires two people VERY CAREFULLY lifting him so as not to pull at the hardware in his spine and anchored to his pelvis.
I never should have had a large coffee so late. I'm jittery. Just waiting for our nurse, Hope (nice name) to come in and help me get him into the reclining wheel chair. I can't do it by myself.
I'm still wondering how many inches the surgery made him grow. I'm guess about 3 or 4. It's wild. |
| Mom and Tom arrive at the hospital to relieve a very tired Daddy |
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