I am Julie, Daniel's Mom. Daniel has Polymicrogyria. His brain is deformed, caused by a virus in utero. He has seizures, developmental delay, motor dysfunction, severe reflux, respiratory problems,etc He is unable to speak, eat by mouth, or walk. Visual strength and a gentle touch are his means of of communicating. Daniel has strengthened my belief in miracles and faith. Enjoy. Share. Follow. Help. Laugh, Pray, make a new friend.
Wednesday, September 18, 2013
My motivational Moment of the day
Facing the Giants - It's all heart from here
Everyday when I wake up, there are giants looming all around me. Waving weapons of responsibility, advocacy, fixing things, bills to paid, phone calls, piles of papers, things to review, appointments to get to, procedures to schedule, earn money$$$, work harder, house is falling apart, kids need clothes, therapy, college, mortgage, utilities, doctors, supplies, medicine, laundry, manage it all giants. Giants each wearing a jersey that says what they are. They intimidate me and make me want to pull the covers over my head.
But I have no choice but to face them. There will be a day when the giants become virtually insurmountable and the decision to push will not be an option. We are that way, when we protect a child. Nothing else matters. And when you have a child with special needs, who is incapable of doing anything for themselves for the rest of their life, indirectly that is a giant you have to dance with for the rest of that child's life.
This video is not about a highschool football team. It's about the gift of leadership. This coach pushes Brock farther than he ever thought he could possibly go. Because Brock couldn't see, and he just had faith in himself and in his coach. "It burns", "I know it burns!!!".... "It's all heart from here"
I feel like life does that to people. People go about a life, that is safe, controlled and comfortable. They have what they need, and they proceed in a routine way. No disabled people, no sick people...just normal life.
And then there are the people who face great trials. The birth of a severely disabled child, cancer of a loved one, loss of a child, losing a job and all security, and whatever Giant "Giant" falls upon them.
You then put your faith to the test. It's then that you realize the true meaning of "its all heart from here". Blood, sweat, tears, pain, and you just keep on pushing. Putting yourself out on a limb and leaving it all in God's hands you just keep on going. Then you fall down. It's give up time. It's time to just say forget it, I'm too weak, it burns, it hurts too much, I can't do it. And while you lay in your defeat a voice says to you... "Give me your best Julie. This is NOT your best. Get up. Don't stop. It's all heart from here. I'm here for you. I am with you. I love you. I will sustain you. Get up. You are better than this. Don't fall to despair and don't fear, because when you get to the end of this difficult road, it will simply turn into another difficult road. Winding and winding and winding. But I will be here. Don't stop. You will be rewarded. I know it's hard. I know. Don't look at others. Their choices are different. You have no choice. I know you won't stop.
So, I take a shower. Drink 3 cups of coffee. Pull my messy hair up in a clip and sit down at my desk, facing those giants. Or sometimes I just ignore them. Or sometimes I just pray for help. Or sometimes I need help. But I don't go back to bed. I don't sob into my pillows until Daniel comes home from school. I make calls to doctors, I call about bills, I negotiate with creditors, I figure out the oil price plan, I order more diapers, I order more medicine, I schedule a 6 month assessment with DSS, and then I go outside to walk my little dog Henry. We practice his commands, and we take a walk. I am definitely not alone.
Faith lifts me back up, every time I remember to ask God to please please please lift me up.
I can't wait until Daniel gets home from school each day. It's a gift that he's healthy and with me. And it's all heart from here.
Labels:
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