I am Julie, Daniel's Mom. Daniel has Polymicrogyria. His brain is deformed, caused by a virus in utero. He has seizures, developmental delay, motor dysfunction, severe reflux, respiratory problems,etc He is unable to speak, eat by mouth, or walk. Visual strength and a gentle touch are his means of of communicating. Daniel has strengthened my belief in miracles and faith. Enjoy. Share. Follow. Help. Laugh, Pray, make a new friend.
Tuesday, September 17, 2013
Florida Morning wake ups Life with Daniel
September 17, 2013
This is an example of the true joy and beauty that is my Daniel. We had just arrived in Florida, where we stay at a family member's home. Daniel was sleeping in the guest room, in a queen bed, with me so I could make sure he was ok and didn't fall out.
When we woke up. He was so cheerful. He was absolutely thrilled at the fact that above our heads there was a ceiling fan. Of all things. Just a regular white ceiling fan, turning and turning. He thought that was just about the coolest thing he had ever seen.
People work so hard to fill their lives with as much materialism as they can. Forgetting what true joy of the heart is. For Daniel, its about as pure as it gets. He likes the breeze of the fan. He likes feeling of swimming in warm water. He laughs and smiles when things please him with no reservation at all.
It's beautiful. He's such a blessing.
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