Daniel Opens up his Easter Basket!! March 31, 2014 |
Mommy is sick today. Writing from the warmth of my many blankets and pillows I am suffering through a terrible chest cold today. Fever, chills, fatigue, aches and cough. Stress allows the bugs to find their way in and I find myself sick alot.
John just bought a "nutribullet" which is a way to make nutritious shakes. Although green and pukish looking they actually really help you get all of your vitamins through natural foods. Time will tell.
Wow its hard when I am down for the count because my services are needed here 100% of the time and taking time off is never an option. So here, on a day when I could be working, studying, cleaning, etc I am snuggled in my bed. Going to fall asleep at some point, and I know this for sure because the eyes in my head are repeatedly trying to close on me while my fingers type away.
Daniel. Daniel had his eyes checked on Monday, and his eyes are great. One eye does have a floater...meaning one eyeball goes in the opposite direction of the other. But overall he got a clean bill of health on the eyes.
On Tuesday, we saw the Gastroenterologist from Connecticut Children's hospital. We are going to be ordering a modified barrium swallow study for Daniel to be followed with a visit to the swallow team, and a new aggressive oral motor therapy program. This is to first, help Daniel control secretions, and second see how well he is swallowing. Eating again is not out of the question...and its something that we are revisiting NOW that his posture is so much straighter.
I think it would be cool for him to be able to taste food again. The things people take for granted... like eating.
The sun is bright. It is a Springtime sun. And even if the air is cool, pretty soon it will be warmer and things will be blooming. Blooming in some rebirth and renewal. It was a dark and sad winter here in Sandy Hook. But we have hope and promise.
HOPE and PROMISE for a brighter day. I have this new bath and body works fragrance called "Beautiful Day" and when you use it, it is magic, it makes you have a beautiful day.
So the sick Mommy here is going to rest. After some prayers. Prayers that Daniels needs will be fulfilled, that we will be able to make ends meet and keep things afloat, prayers that enough financial help will come through that Sarah will be able to go off to college without stress. Lots of prayers. Lots of thoughts.
And once again... I am falling asleep here at the wheel. Pain in my chest and back. Being sick stinks.....
Happy April 2013.
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