I am Julie, Daniel's Mom. Daniel has Polymicrogyria. His brain is deformed, caused by a virus in utero. He has seizures, developmental delay, motor dysfunction, severe reflux, respiratory problems,etc He is unable to speak, eat by mouth, or walk. Visual strength and a gentle touch are his means of of communicating. Daniel has strengthened my belief in miracles and faith. Enjoy. Share. Follow. Help. Laugh, Pray, make a new friend.
Wednesday, October 5, 2016
AMAZING MAIL, OH MY GOSH!!
Saturday October 1, 2016
Hi everyone. Welcome to the world of vlogging and blogging. If you would like to send us mail...
our address is Julie Hasselberger PO BOX 3611 Newtown CT 06470
Thank you and please subscribe to our youtube channel too.
Have a awesome day. Even though I am struggling with very severe fibromyalgia pain, trying to make ends meet and need so much help financially even to cover medical needs, and more than ALITTLE busy with tons of issues with medical care, therapy needs, educational stuff... and my entire family management.. I try to keep my heart strong.
This world, our society, does very little to help people in my shoes. I had to walk away from a full time professional career and have dedicated my life to caring for this young man. But It is a punishing decision financially, and that's just not fair.
Have fun. Find JOY in the journey
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment