I am Julie, Daniel's Mom. Daniel has Polymicrogyria. His brain is deformed, caused by a virus in utero. He has seizures, developmental delay, motor dysfunction, severe reflux, respiratory problems,etc He is unable to speak, eat by mouth, or walk. Visual strength and a gentle touch are his means of of communicating. Daniel has strengthened my belief in miracles and faith. Enjoy. Share. Follow. Help. Laugh, Pray, make a new friend.
Sunday, January 31, 2016
Saturday, January 30, 2016
Wednesday, January 27, 2016
Sunday, January 24, 2016
Why I Vlog
"Hi julie my name is jennifer. I live in san diego ca. I just wanted to let you know that I sub .To your channel and I enjoy your videos. some people just don't understand. Also i am going to school to learn how to care for people like Daniel. At one point in my life i was like i don't want to have to finish my education. Than i found your blog and channel on YouTube and I was like yes i want to go to school to finish my degree in helping people who are like Daniel i still have a long way to go but i know this what I want. I look forward to hopefully meeting you and your family and also i watch all your videos"
hi nice to meet you and your family my name is Chris i'm 22 and I have cerebral palsy I came across your channel a few days ago and it has turned into one of my favorites keep up the good work very entertaining hope to hear back from you
hi nice to meet you and your family my name is Chris i'm 22 and I have cerebral palsy I came across your channel a few days ago and it has turned into one of my favorites keep up the good work very entertaining hope to hear back from you
Depression, when sad doesn't need a reason
One day you sit in your house and feel like there are a hundred things you should do, and people you should talk to, but you are frozen. With no particular reason, the world just feels empty and flat. Its hard to motivate yourself to do anything. So you try to sleep. Then the pretending kicks in. Pretend to smile. Pretend to be busy. Pretend to be "OK". But you are sad. Sometimes.
The medications help most days. But not all days. Its just not that simple. Most people say they understand but they really don't. They expect that you should be behaving normally and being cheerful if you don't have a reason to be sad. But even with reasons to be sad, those reasons are not necessarily why a person can feel like they are in a thick cloud of goo. Just stuck.
When your brain doesn't have the right chemical balance, your perception of life is a direction reflection of what your brain is doing, or not doing. Depression is not a choice. It is an illness. It makes you feel like a failure when you realize you have forgotten to do so many things of importance.
And then you reach hard for that ability you have worked so hard on. To meditate and be in the present moment. To find joy and love all around you. To be grateful. Its all work, but one slight change in perception can truly make a difference in your day.
I imagine everyone who suffers from chronic depression has people in their life who simply don't understand, or believe that it is even a "thing". They consider you lazy, or "out of it", and tell you to "cheer up", and "take a pill". So you go to your therapy session, and after years of therapy you sit down, take a deep breath and wait for whatever is ready in your head, to just expel itself.
It does not mean you don't care about people. It does not mean you don't love your family. It does not mean you are incapable of living a happy functional life. Because with treatment, and care, you can. But it does mean that there will be rough patches. And it does mean that there will set backs and things that just derail you.
The battle with choosing happiness over darkness is a daily game for someone who is depressed. When you can win most days, you have developed great skills, and the medicine is helping. And maybe you will be able to go for a walk that day, and actually get through your piles and piles and piles of insurance paperwork. Feeling accomplished.
Other days, you have a crazy strong desire to be creative, to paint, or play the piano, to write poems or songs, to experiment with make up, to color in a coloring book, to buy a guitar even though you don't know how to play but want to. Reaching out of your funk to have faith in "what can be" Just allowing "whatever" to guide you. Its all a possibility.
In some ways, depression is a way of slowing you down. Because life can flitter by, just like that, and all you have done is paid bills, cleaned your house, done your work, and gone to the doctors. Day after day. And you have not helped anyone, or laughed much, or created anything, or made a change in the world. Depression requires that to make a happiness choice, you have to push through the walls of that "BOX" that society puts us in. For me, I did that on the day Daniel was diagnosed as completely disabled. My BOX blew up actually. So I am making my way.
I never mean to forget things. I love so deeply and care so much, but sometimes I forget to tell you. I want to be better at that. Sometimes depressed people hurt and anger the ones they love the most. And they have such guilt about it. Sometimes depressed people seem like the masses... moving along like lemmings headed toward a cliff. But they step out and turn around, and go back home. They put on the TV and watch a Nicholas Sparks movie, and cry for 2 hours when they should be productive. Altered reality I guess. But it doesn't mean they are crazy. They are just coping.
Some people in my own life do not know the extent of my depression, nor do I tell them. Sometimes I talk about it. But mostly, now, I deal with it. My spouse will not come to my counseling, despite years of almost begging, because he could really help in my treatment. But I think he's more depressed than I am, and afraid to face his own reality. And he thinks its a stigma and that medication is a weakness. So his anger stays, and my depression heads to the doctor, and the therapist. Everyone has their own coping choices.
On my journey, I choose to find joy. On the worst of days, I force myself to be grateful and joyful for a God who loves me, and a family that adores me. There is joy everywhere. With each little moment of joy, I find a peace that is warm, because its like following a path. Or follwing little lights in the forest, they lead you to a new perception and a new way of looking at things. And that leads you to more joy. If you choose to follow, you are choosing to move towards light and happiness.
There are negatives and positives in life. Sometimes, the things we think are the most positive, are actually toxic and dangerous for our hearts. Sometimes things that seem hopeless and negative, are really opportunities to grow, to change, to learn, to feel joy, and to connect with humanity.
Finding joy in the journey. Every day. And sharing it. With you.
The medications help most days. But not all days. Its just not that simple. Most people say they understand but they really don't. They expect that you should be behaving normally and being cheerful if you don't have a reason to be sad. But even with reasons to be sad, those reasons are not necessarily why a person can feel like they are in a thick cloud of goo. Just stuck.
When your brain doesn't have the right chemical balance, your perception of life is a direction reflection of what your brain is doing, or not doing. Depression is not a choice. It is an illness. It makes you feel like a failure when you realize you have forgotten to do so many things of importance.
And then you reach hard for that ability you have worked so hard on. To meditate and be in the present moment. To find joy and love all around you. To be grateful. Its all work, but one slight change in perception can truly make a difference in your day.
I imagine everyone who suffers from chronic depression has people in their life who simply don't understand, or believe that it is even a "thing". They consider you lazy, or "out of it", and tell you to "cheer up", and "take a pill". So you go to your therapy session, and after years of therapy you sit down, take a deep breath and wait for whatever is ready in your head, to just expel itself.
It does not mean you don't care about people. It does not mean you don't love your family. It does not mean you are incapable of living a happy functional life. Because with treatment, and care, you can. But it does mean that there will be rough patches. And it does mean that there will set backs and things that just derail you.
The battle with choosing happiness over darkness is a daily game for someone who is depressed. When you can win most days, you have developed great skills, and the medicine is helping. And maybe you will be able to go for a walk that day, and actually get through your piles and piles and piles of insurance paperwork. Feeling accomplished.
Other days, you have a crazy strong desire to be creative, to paint, or play the piano, to write poems or songs, to experiment with make up, to color in a coloring book, to buy a guitar even though you don't know how to play but want to. Reaching out of your funk to have faith in "what can be" Just allowing "whatever" to guide you. Its all a possibility.
In some ways, depression is a way of slowing you down. Because life can flitter by, just like that, and all you have done is paid bills, cleaned your house, done your work, and gone to the doctors. Day after day. And you have not helped anyone, or laughed much, or created anything, or made a change in the world. Depression requires that to make a happiness choice, you have to push through the walls of that "BOX" that society puts us in. For me, I did that on the day Daniel was diagnosed as completely disabled. My BOX blew up actually. So I am making my way.
I never mean to forget things. I love so deeply and care so much, but sometimes I forget to tell you. I want to be better at that. Sometimes depressed people hurt and anger the ones they love the most. And they have such guilt about it. Sometimes depressed people seem like the masses... moving along like lemmings headed toward a cliff. But they step out and turn around, and go back home. They put on the TV and watch a Nicholas Sparks movie, and cry for 2 hours when they should be productive. Altered reality I guess. But it doesn't mean they are crazy. They are just coping.
Some people in my own life do not know the extent of my depression, nor do I tell them. Sometimes I talk about it. But mostly, now, I deal with it. My spouse will not come to my counseling, despite years of almost begging, because he could really help in my treatment. But I think he's more depressed than I am, and afraid to face his own reality. And he thinks its a stigma and that medication is a weakness. So his anger stays, and my depression heads to the doctor, and the therapist. Everyone has their own coping choices.
On my journey, I choose to find joy. On the worst of days, I force myself to be grateful and joyful for a God who loves me, and a family that adores me. There is joy everywhere. With each little moment of joy, I find a peace that is warm, because its like following a path. Or follwing little lights in the forest, they lead you to a new perception and a new way of looking at things. And that leads you to more joy. If you choose to follow, you are choosing to move towards light and happiness.
There are negatives and positives in life. Sometimes, the things we think are the most positive, are actually toxic and dangerous for our hearts. Sometimes things that seem hopeless and negative, are really opportunities to grow, to change, to learn, to feel joy, and to connect with humanity.
Finding joy in the journey. Every day. And sharing it. With you.
Saturday, January 23, 2016
Wednesday, January 20, 2016
Monday, January 18, 2016
Sunday, January 10, 2016
Friday, January 8, 2016
Wednesday, January 6, 2016
Tuesday, January 5, 2016
Friday, January 1, 2016
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