Here I am again..
After an unsettling issue with the Newtown school system making unapproved changes to Daniel's IEP. I was able to get the school system to reverse what they did and restore Daniel's nursing services. I don't really understand why they thought they could get away with taking away his nursing program...but they didn't. Thankfully we did not have to retain an education attorney, but the mental stress this put on me one week before school began was definitely unnecessary.
And happily, Daniel was able to get on his special wheelchair bus on Tuesday and attend school. Daniel is NOT mainstreamed into regular school. Technically, I guess, he would have been a sophomore in high school by now. But he attends a special program called STARR in Newtown's 5th and 6th grade school. It is comprised of special education teachers, therapists, and nurses. And even with all the help in place, we still have to be ready at any moment for the next phone call to come regarding sickness, or problems.
Really, the concept of school for Daniel is kind of hard to wrap your brain around when you are used to the traditional way of life. He has no "grade"... he just goes to a program where he can do his "thing" and apply it to educational topics and activities. There is no true way to measure what Daniel knows and doesn't know...although we try setting goals for progress. And sometimes he meets them. Using an IPAD at school, was a great idea... as was the eye gaze dynavox system. The important thing is that he is healthy, safe, and stimulated. Most of his day is spent in variuos therapies (speech, Occupational, Physical) but he does get to go to the typical classes like music, art, and gym. Its been a good compromise to give him some peer intervention.
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| Daniel's first day of school and new bus! |
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| Checking out the new bus...very curious |
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| And off to school he goes!!
Brother Thomas is in 6th grade this year, and his classroom happens to be right underneath Daniels! Yay!!
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