Father's Day and Swimming

Daniel has been doing well...  so far no illness or setbacks in our quest to quench his weak bones with phosphorus and calcium supplementation.  He will have blood work at the end of this week to see how much  progress has been made....and the surgeon for the scoliosis surgery will consult with the bone doctor (endocrinologist) to see when surgery will be possible.

Still having alot of doctors appointments, and dentist appointments and normal daily life.  Dealing with insurance, and equipment suppliers, and wheelchair repairs, and lift van repairs, and medications (oh my Gosh so many prescriptions) ...  its a jumble of non stop multi-tasking.  

Throw into this salad of life....  managing the life of a soon to be senior in highschool and a soon to be 6th grader...a house, and trying desperately to earn money with whatever spare part time work I can find.  Its a recipe for insanity.

But one saving grace has been the YMCA of Brookfield. They have a financial scholarship and we have been able to take Daniel to the therapy pool there several times a week to swim.  He loves to swim...his body responds miraculously to the water.  

This is the last week of school here in Newtown, CT... it officially ends this Thursday the 21st.  Then what?

Mommy anxiety is still at all time high...because just when I seriously start considering going back into Human Resources (which is not my desire, but my backgound) they all tell me ..."sorry, even with a masters degree and 15 years experience...you've been out of the workforce for 10 years and we wont even look at you"    Its kind of humbling, because you work so so so hard to become the best and the brightest you can be...and then you have to go away to be a full time Mom to a disabled boy...and BOY with that comes more advocacy and intelligence than ever.  But they won't even talk to you.  WHAT IS THAT!!!!!

So I  keep on going... taking care of these kids.  Praying for miracles. Praying for daily strength and good health.  Many blessings are here...we just need to see them.  Here are some pictures from Daniel's swim on Father's Day with John.  Swimming with Daniel is a great joy for us...