Thank heavens we have nursing today. Daniel had a fever last week but he is turning the corner just fine, so it seems. I am delighted that I have found my blog again. It is a tough battle lately.... just dealing with life. Financially, I have to take what money I can...and do the best I can...because I have a family to provide for. I am really sick to my stomach to have to go back to work at several part time jobs, because I know that the minute I have to run and care for Daniel I am probably going to be fired.
But Sarah and Thomas are both worthy of a good life...and I certainly need my house in order to give Daniel a good quality of life... its pretty much all he has.
Most people simply dont get it. So quick to fill me with their lectures about the way I should do things...but they are not the ones raising Daniel. Living a life here in Connecticut is expensive..and cold.
Anyhow..I am a "hopeless" optimist with depression. Hows that for an oxymoron.
I have to bury a guinea pig today that died yesterday. Again...thank God for our nurse today...because my mood is pretty crappy. The needs here are killing me. But I have to keep pushing pushing pushing... When I am with my kids...I smile for them... they are my reason for living.
But Sarah and Thomas are both worthy of a good life...and I certainly need my house in order to give Daniel a good quality of life... its pretty much all he has.
Most people simply dont get it. So quick to fill me with their lectures about the way I should do things...but they are not the ones raising Daniel. Living a life here in Connecticut is expensive..and cold.
Anyhow..I am a "hopeless" optimist with depression. Hows that for an oxymoron.
I have to bury a guinea pig today that died yesterday. Again...thank God for our nurse today...because my mood is pretty crappy. The needs here are killing me. But I have to keep pushing pushing pushing... When I am with my kids...I smile for them... they are my reason for living.
2 comments:
Hi Julie, I appreciate your post. I can identify with the difficulites of raising children with special needs. I had a couple of questions for you. We have been given no information for Cassidy. We dont know what to expect except for seizures. We have been given nothing in regards to what the future holds for her except that she will be under our care. Have you been given any info for Daniel? Do you have good doctors or specialists to guide you. Despite her early diagnosis the "medical experts" of Los Angeles have been little help. Jeana Rodgers
I really relate to this. We never knew when or if Daniel would have seizures. Its quite scary...because they just say "its possible". I think looking back...I would have requested an EEG just to check for seizure potential. We were hit out of the blue with a grand mal in the middle of the night, Age 4.... I could have been more prepared....but who knew???? Just watch Cassidy for signs of smaller seizures...and I would consider an EEG or a serious discussion with the neuro about having rescue meds on hand..and how to use them....just in case. I wish you well...Julie
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