I am Julie, Daniel's Mom. Daniel has Polymicrogyria. His brain is deformed, caused by a virus in utero. He has seizures, developmental delay, motor dysfunction, severe reflux, respiratory problems,etc He is unable to speak, eat by mouth, or walk. Visual strength and a gentle touch are his means of of communicating. Daniel has strengthened my belief in miracles and faith. Enjoy. Share. Follow. Help. Laugh, Pray, make a new friend.
Tuesday, August 27, 2024
Wednesday, November 22, 2023
Daniel would like all to know, that we are having a Black Friday Sale until Nov. 30 2023. All items in the shop are 40%. Hurry, this sale ends on Nov. 30th! Click on the link to visit "Daniel's Special Art"
https://danielsspecialart.etsy.com
https://danielsspecialart.etsy.com
Monday, July 17, 2023
EPISODE 25 , YOUR health matters too, caregivers
Thursday, April 20, 2023
The Adapted Life Podcast Episode 23
Please tune in, I just finished a podcast about my son Daniel's recent MRI.
https://www.buzzsprout.com/855145/12685640
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Thursday, March 2, 2023
Tuesday, January 31, 2023
Monday, January 9, 2023
Thursday, November 17, 2022
Monday, September 26, 2022
Saturday, August 27, 2022
Sunday, July 31, 2022
Monday, June 27, 2022
Friday, May 27, 2022
GRATEFUL FOR LIVE STREAMING
Tuesday, May 24, 2022
Thursday, April 21, 2022
Thursday, April 14, 2022
The Easter Card
The Easter Card.
Yesterday I received a card in the mail from my Dad. It was an Easter Card. Cheerful and hopeful, as is the essence of this time of year. When I opened the card, I was walking out in my yard with the dogs. As I slowly turned the cover of the card, reading the poem, I felt this surge of emotion that actually made me feel shaky, and my lip quivered. And I began to sob. Deep guttural sobbing. Missing my Mom. Longing for her voice, her presence, her love. The card was signed, Love Dad. Love, Dad. It was profound to see that my Dad carried on my Mom's love of Easter and Spring. She always did nice things for others. I guess he wants to keep the love blooming.
Losing my mother has been life changing, all the way down to my soul, and where ever my deepest self resides, I miss her. I know her energy and her spirit is living on, in the light and love that she was.
Grief is a strange companion. One minute you are sobbing and heart broken. The next you are seeing the little miracles that continue on and on. The childlike spirit that I have always nurtured within me, was a trait I inherited from my Mom's inner child and her love for, well her love for love.
Spring is here. In all of its beauty and rebirth, and while it reminds me of her and brings sadness, it also reminds me of her and brings joy and gratitude for all of the beauty in nature and in humanity.
I have a lifetime of Easter memories, because she made it happen. She loved the bunnies, the decorations, the flowers, the treats, and most of all, she knew the true meaning of the resurrection of Jesus. She blended it all together like an Easter bunny Jesus is my savior smoothie. Cheerful. Bright. And so many bunny statues.
I have no plans for Easter except to honor my Mom and sit in fond recollection of a life time of her love for Spring.
That Easter card, meant everything. Despite the sobbing mess that I was for a while yesterday.
I had a great Mom. I have a great Dad. They are both here with me. Forever and always.
Julie Hasselberger
April 13, 2022
Monday, March 21, 2022
Monday, March 14, 2022
Thursday, February 24, 2022
Friday, December 3, 2021
Tuesday, November 30, 2021
Monday, November 15, 2021
FIGURING THINGS OUT
Thursday, November 11, 2021
Saturday, October 30, 2021
Friday, October 8, 2021
Friday, October 1, 2021
Friday, September 17, 2021
Monday, September 6, 2021
Monday, July 26, 2021
Sunday, July 4, 2021
Sunday, June 27, 2021
Saturday, June 12, 2021
NO NURSE CAREGIVER WOES
Thursday, June 3, 2021
Tuesday, June 1, 2021
Sunday, May 30, 2021
Thursday, May 20, 2021
Friday, April 23, 2021
Friday, April 16, 2021
Thursday, April 15, 2021
Wednesday, April 14, 2021
SPECIAL NEEDS BIBLE STUDY
Monday, April 5, 2021
Saturday, April 3, 2021
Saturday, February 27, 2021
Thursday, February 18, 2021
Friday, January 29, 2021
I'm still here friends, and will soon be writing more, as I am planning to anyhow. Please know how much I value the ability to release all of the stress and tension that can infect even the strongest person's desire to seek joy and live a life of abundance.
Stay well. Today is Friday, January 29. 2021
Monday, September 14, 2020
Sunday, August 30, 2020
Wednesday, July 15, 2020
Thursday, June 18, 2020
Wednesday, June 17, 2020
Friday, May 8, 2020
Thursday, April 30, 2020
Wednesday, April 15, 2020
Tuesday, April 14, 2020
Thursday, April 9, 2020
Saturday, April 4, 2020
Tuesday, March 17, 2020
SEALS, SUNSETS AND SARAH ROSE
Sunday, March 1, 2020
Saturday, February 8, 2020
Friday, February 7, 2020
NEW PROJECT IDEAS AND STUFF
The regular "working" world is not a suit that fits me. I've been spending time, re engineering myself and I am working on developing a podcast. Because I am also a caregiver, and have a mountain of responsibilities, it may take me a hot second, but I am getting closer.