It's late and I'm tired. My right hand, wrist, elbow all hurt from too much texting and typing I guess. I've found social media and internet groups to be such a place of connection and comfort. As you can see from the many video posts I have put up lately, I am on You Tube and trying to build a channel, mostly for Daniel's benefit, but really I am not sure where I want it to go. Sometimes you have to throw an idea to the wind and when it comes back at you its completely different.
I never thought, for example, that I would have people privately emailing me for emotional support with all types of problems. I never realized how many people are hurting and suffering with fibromyalgia like I am. I never dreamed in a million years that I would ever get 10 subscribers, and we now have 89.
I am just Julie, the somewhat odd and eccentric Mom of three children. Living in Sandy Hook CT is a struggle financially, and someday I pray that we will have the ability to move Daniel south and OUT of this expensive place with harsh winters. 20 years ago I would have told you my future will look like "me as an executive and owning a ski house in Vermont." That ship has sailed to another port.
My young man who can't speak. My young man who is so quiet and so simple, but yet always leaving me wondering HOW much does he actually understand. Its so very hard. But when he holds my hand with his soft hand, I just know he is there with me. Whatever that means.
Please know that for any Mom to have a child with special needs is so very difficult, but that doesn't mean that the Mom is a super hero, she still needs hugs and friends.
It's late and I'm tired. Positioned ergonomically horrible in my bed with my laptop on my lap....doing what I tend to do every night.... read and watch until I fall asleep from exhaustion, with Daniel's video monitor right beside my bed.
Be at peace. Thank you for following us.... Please feel free to leave me any comments and questions here, on You Tube, on Facebook, where ever..
Until next time.
Signing off...
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