Special Trees From Special Girls
Back in December I was approached from the Mom of a Sandy Hook Brownie Troop. It was in response to an email I had sent out in hopes of raising money for Daniel's Fund and to help support us through his Spinal Fusion surgery.
Well, as we all know here, Daniel became very ill after the surgery and we were at Yale for 34 days, until January 11th.
The girls wanted to get together as a group and create a tree of caring. Well, they sure did, it was a tree times two!! On Friday, February 1, we finally found a time to connect and the trees were delivered to Daniel/us. It was more than just a nice gesture!! The trees were intricately decorated with handmade ornaments, many made very cleverly with colorful duct tape!! They were also covered with gift cards and money rolled up. All things that will help us, and help us care for Daniel. The lights on the trees really cheered Daniel up. He was fascinated, he loves Christmas lights.
I am so grateful for the kindness of others. My goodness, the hearts of these girls are so big. Hopefully we will all get together soon so that they can spend some time with Daniel.
Raising and caring for a complicated and completely disabled child is pressure and stress that goes beyond description. And when you have committed to loving and caring for that child it doesn't ever stop. Daniel's needs go on and on. That is why I hope to build a fund. For his future too. We are getting older, not too much older! But I think about him now that he is a teenager. Needless to say, he will be with us until whenever or whatever happens to make that impossible. And that is going to be an extreme "burden" even though I don't consider it one. Not in that sense anyhow. I adore this kid, he is just so amazing.
Being able to give love is a great way to learn how to love. If that makes sense.
Today, February 5, 2013 it is snowing gently outside. I'm sitting here in quiet peace just writing and reflecting.
Life is a rollercoaster... and right now, I'm just sitting and waiting for the ride to begin its ascent again. Because it will. It always does.
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