Thursday, July 12, 2012

The Ford Pinto Wagon...and Summer prayers


Prayer for finding employment

Heavenly father, please sustain my spirit as I search for new and meaningful work. You have blessed me with a healthy body and a keen mind for which I am grateful. I ask that you open my path as I seek employment that will allow me to support my family and myself while serving others and your divine purpose.
In gratitude and grace, Amen.


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Prayer for prosperiety


Dear God, source of Love and Life who brings abundance to all,
Please bring prosperity to me and my family now.
We ask that these basic needs be filled:
Money to pay our bills,
Income to meet our mortgage (rent),
Enough to feed us healthy food,
More than enough for health care and wellness...

And especially to sustain and care for Daniel

Beyond the material needs, please uplift our souls.





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Today is Thursday July 12, 2012.  Its been hot, and sunny and practically perfect summer weather here in Sandy Hook, CT.   Schedules are hectic, but boy would it be perfect weather to take a picnic and head to the beach for a day.  I remember as a kid, we always used to picnic and do day trips for our vacations...it was fun, and it was all we knew back then.

But raising a child who is medically fragile, and can't walk, and needs medication around the clock, and can't talk, and is heavy to carry, and has seizure risks, and severe scoliosis...poses alot of complication and compromise to what could be a normal active summer for our family.

I sometimes sit and reflect on the things we could be doing if we all were healthy and normal...what would it actually look like???  How would I be as a Mom?

And the reality is...  that's not the plan that God had in store for us.   So we have to try and work around the complications, and do the best we can to make things fun and find joy.

I have been experiencing daily anxiety to high degree about Daniel...and what needs to be done to correct his spine.  And I wake up sweating and scared.  And in order to calm my storm I do deep breathing exercises, and I pray.  

Then the next day I will start having anxiety about finances and finding a job, and the same things happen, sweaty and heart beating fast and worry about the future....  and I find time to calm the storm again, and pray Prayers like the ones above.

Daniel on an adventure...  thank GOD for handicap parking spaces.
This road we walk is not paved and smooth.  Its bumpy and full of wrong turns, and giant hills, and riddled with pot holes and problems.  But there are really only two choices.  Stop.  And give up.  Or just keep on walking.  Keep on trying.  Keep on moving.

That is why I do what I do.  I love my family....and I would go to the ends of the universe to help them.  But Daniel...  Daniel is so different.  

I am his ears, his words, his touch. I am his breathing, his eating, his moving.  I am the key to his life and his sustainance and he can not survive without 24/7 attention.

That is why I reach for help.   Because if you cant do that....what's the point of having community and family?  We help eachother, we love eachother, we support eachother...   we give of ourselves, through our words, actions, prayers, and deeds.   That's how I was raised.

On those hot summer day trips to the beach as a kid...I remember being packed into the back of a little Ford Pinto station wagon...we had very little money.  But somehow back then I didnt know that, I just knew that we were getting out of the apartment and going somewhere fun.   Life seemed so simple for me, and I know now that it must have been so hard for Mom and Dad...but they never shared that worry.   
I think our wagon looked something like this...  ours was a copper color!  Good times....Growing up in the 70's
We just did the best we could.   And praise God the three of us were healthy, happy, girls....

What are you doing this hot summer?  Maybe you have the money to take your kids on a cruise, or to Nantucket for a month, or put them in summer camps, or maybe, just maybe...  you can only afford a trip to the zoo...or a movie here and there.     Wherever your adventuring spirit takes you...  please remember as your kids run freely on the beach...that many kids will never be able to run freely on the beach...   remember how blessed you are.  


I am Daniel's feet...  I run on the beach for him.   He smiles in the breeze and sun as he watches.

Julie Hasselberger

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