The Road to Spinal Fusion Surgery...

Daniel had a consultation with Dr. Brian Smith at Yale last week. He is being prepared to have have spinal surgery to correct his ever worsening scoliosis.  This will be no easy task. The boy is 14 years old and only weighs 64 pounds.  He eats ONLY via g tube...and therefore his nutrition has to be adjusted.  In addition, he needs to be pneumonia free for 4 to 6 weeks.   I'm having nightmares and awful visions of the post op recovery process. There are many risks for Daniel...they made that clear to me.   So over the next few months I will be talking about our road to surgery for the boy who is so badly crooked and bent to his left side.  Sigh.  I don't know how to process this.  Blogging helps...  to settle the anxiety.   Its a HUGE surgery..over 8 hours long...........