MEDICALLY FRAGILE AND POSITIVE FLU

SUDDEN ILLNESS

DANCING AT DINNER

WARM RAIN AND A DATE NIGHT!

EACH DAY IS A VICTORY

EACH DAY HE DOES WELL IS A VICTORY

KEEPING BUSY IN THE STANDER

HOUSE GUESTS AND PANCAKES

ALL SNOWED IN ON A THURSDAY

DANIEL TELLS THE JOKE OF THE DAY

WUBBLE ISSUES

HAPPY NEW YEAR 2018

POST CHRISTMAS INSANITY

CHRISTMAS VLOG 2017

HASSELBERGER CHRISTMAS EVE 2017

HASSELBERGER CHRISTMAS EVE 2017

CHRISTMAS LUNCH WITH JULIES PARENTS

A LIFE THAT CHANGES DAILY

SEIZURE CHANGED HIS ENTIRE DAY

CARDS WILL BE GOING OUT

PINE CONES IN SNOW CRAFT

WINTER WONDERLAND

TUBA CHRISTMAS

MORE SNOW AND DECORATING

WINTER CONCERT 2017, BASSOON?

DANIEL AND THE CHRISTMAS TREE

LUNCH AT MOES TRYING QUESO

FIRST SNOW STORM OF 2017

CHRISTMAS LIGHTS FRUSTRATION

SURVIVING MY COLD AND A SPECIAL THANK YOU

A MONDAY FULL OF DOCTORS

DANIEL GOES TO THE SYMPHONY

DANIEL GOES TO THE SYMPHONY

DECEMBER IS HERE

SHAKE YOUR BOOTY DANIEL

JULIE HAIR CUT

I HAVE A PROBLEM WITH MY DOGS

HOME AND THE START OF CHRISTMAS CHEER

SO HAPPY TO BE HOME

HAPPY BIRTHDAY DANIEL 20 YEARS OLDWMV

MAKING VEGAN BIRTHDAY CAKES

UNFUSSY ATTEMPTS

A DATE WITH MY DAUGHTER

WOODSTOVE CLEANING AND GETTING SICK

YOUR SMILING

MY NEW SPACE AND DANIEL NOT WELL

FINGERPRINT CHRISTMAS TREE

BANQUET FUN

BEAUTIFUL VOICES AND NATIONAL CHAMPIONS

COFFEE COFFEE COFFEE

TAKING DANIEL TO WHOLE FOODS

TAKING DANIEL TO MARCHING BAND

SPINAL FUSION CHECK UP DAY

TREES DOWN AND HALLOWEEN 2017

IM A WINNER MOM

GUTTER CLEANING SPLASH ATTACK

DANIELS BIRTHDAY IS COMING

DANIEL IS GETTING FAMOUS

WORKING DESPITE THE PAIN

DANIEL'S HOME!!!!

DOG MERMAID

TAG SALE, PUMPKINS AND BAND SHOWS

HE DID IT!!

SPECIAL DAY, OUT OF TOWN GUESTS

NEED TO FIND A UROLOGIST??

DANIEL HAS A SILLY NIGHT

CARING FOR FAMILY

TERRIBLE SPASTICITY

MY NEW CHIHUAHUA SKELETON

DECORATING FOR HALLOWEEN

WE BOUGHT A SUBURU

IT WAS A BUSY DAY

SILLY OPERA VOICES

HAIR CUT DAY

WHY I DIDN'T GO TO THE HOME SHOW

FUN DINNER OUT

DANGERS FROM THE TREES

PULMONOLOGIST VISIT

WHEN THE DOCTOR IS CLUELESS

POST WEDDING SICKNESS

It doesn't take much to trigger Daniel into illness.  Although we had such a beautiful day at my niece's wedding the day before, Daniel was exhausted and fatigued.  He had a fever and could't exert much energy without suddenly falling asleep again.



All day, on this Sunday, I kept going....working and working, cleaning, doing laundry, checking vital signs, changing diapers, documenting... and doing everything else that needs to be done.



I was exhausted too. 



Special needs Mother's always have to be one step ahead.....   its hard when you are tired.   There is no break.



Thanks for your support, if you actually watch these video's, and subscribe to our youtube channel, thank you. 



Love Julie

AMAZING

A WINDY DAY

  PLEASE HELP..  RAISING FUNDS FOR DANIELS NEEDS....  WE COULD SURE USE A MIRACLE

SHREDDING PUPPY

REALLY HARD WORK

LOOKING UP LIKE DANIEL DOES

DANIEL MEETS HILLARY CLINTON

VACUUM CLEANER FEARS

PRIMARY CARE FOR TESTS AND CHECK UP

PRIMARY CARE FOR TESTS AND CHECK UP

Medically Fragile and Non Verbal

Sometimes its a complete mystery.  Thank you for following my blog, and our videos...   My goal is to share awareness and tell my story, about my life as a Special Needs Mother.   So here it is.



Spread Love Friends.   We have to take care of eachother...

STAYING DETERMINED EVEN WHILE WORRIED, just "push into it"

MUSIC FROM THE BASEMENT

TAKING DANIEL ON A DRIVE

I FINALLY DID IT!

CHANGES IN SCHOOL DAY

SPONTANEOUS BEACH ADVENTURE

DANIEL INSTALLS WINDOW BLINDS! WITH LOTS OF HELP

TUBA POLISHING PARTY?

BONFIRE TIME

JUST BREATHE

Anxiety from not being able to handle everything financially and all of the pressures from every direction...and worry about Daniel's health, hits me like a hurricane sometimes, and I have to work extremely hard to get through it.   Sometimes, I can breathe through it, and meditate...     Its just SO much to manage mentally, all the time, every minute....   But I am trying.    And I always pray for miracles, and help.