I am Julie, Daniel's Mom. Daniel has Polymicrogyria. His brain is deformed, caused by a virus in utero. He has seizures, developmental delay, motor dysfunction, severe reflux, respiratory problems,etc He is unable to speak, eat by mouth, or walk. Visual strength and a gentle touch are his means of of communicating. Daniel has strengthened my belief in miracles and faith. Enjoy. Share. Follow. Help. Laugh, Pray, make a new friend.
Thursday, August 14, 2008
Saturday, May 3, 2008
Pictures of Seasons in Sandy Hook CT
We live in Sandy Hook Connecticut...its a pretty town, and sometimes in life people miss the simple beauty that lies right in their own yards and neighborhoods. I don't...I am so grateful to God that I can live here... and want to share some pictures that often bring me great joy and peace to look at... at different times of the year when I want to reflect on the seasons here!
Sarah Rose
Sarah Rose is a straight A student these days. She specializes in You Tube, American Idol, and Itunes. She is sweet and funny...and cracks me up. Usually. Today she posted a silly video to You Tube with her friend Allison...I wish I had that kind of stuff when I was 12. What else is she up to? Dancing, soccer...piano... viola... This weeks trauma, her first sports related injury...a sprained ankle. She is pretty tired of the crutches...but loved all the attention!!!!
What AM i going to do with this kid????
Monday, April 28, 2008
Daniel Plays Basketball
This year, Newtown started its FIRST EVER special needs basketball program called Hoopsters. Although Daniel was the only child in a wheelchair, he enjoyed it very much. So much love and detail went into that program.
Shown in the picture is Marques, Daniel's nurse, who volunteered to be one of Daniel's "buddies". There were about 21 special needs kids in the program, and they loved having their own jerseys!! At the close of the season they were given medals. Marques lifted Daniel way up high and helped him slam dunk a basket!! (something John and I couldnt do because we are toooo short!!!)
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